
AS MY JOURNEY CONTINUES…
March 2, 2011
Hello dear friends and family – yes, it’s been too long since the last update in Aug. 2010. That’s because I’ve been really busy! I’ll bring you up to date with the least amount of words possible (you know by now not to believe me when I say this…).
Let’s recap – I had just gone thru a lumpectomy on July 27th, 2010 and was doing well.
I had a very successful Shimmy 4 Critters Fundraiser at the new Riverside Animal Shelter’s location on Sept. 19, 2010. We had fabulous vendors and an outstanding line-up of performers. We raised roughly $2000 and adopted 24 pets! Everything fell into place and everyone was so very helpful! This year’s 2nd Annual Event will be held on Sat. Oct. 8th at same location.
The day after this event, I woke up with my whole chest bright red and swollen with a 102 degree fever. Went to Primary doctor (Dr. Doughten), they took a culture, but it came back negative for infection. I then went back to Mexico and had Dr. Espinoza look at it and he checked it and said there was no infection. The symptoms continued so I re-contacted Dr. Doughten who sent me to a local surgeon named Dr. Attar. My appointment was 3 days later, where upon examining me, announced I had a Staph Infection and sent me directly to be admitted to the Emergency ward in order to have surgery the very next day. Amazing how it went from No infection to Staph infection. Hummm.
Surgery went well – this is on Oct. 27th. I really like Dr. Attar and his staff. I’ve had to have home nursing daily - for the wound and one to show me how to administer the Anti-Biotic thru I.V. What a treat it was to have the portal-cathe so that my veins would not have been abused. Met some very nice nurses that took good care of me. Then the fun part happened. I was allergic to the Vancomycin – had all the side effects that were flu-like including nausea, vomiting, fever, chills, body aches/pains. Asked Dr. Attar if perhaps I had picked up the flu, he said not likely. But what he DIDN’T say is that I had all of the side effects of the drug. Duh. I told him I wasn’t taking this product anymore, so he put me on Diflucan – these are both the strongest anti-biotics on the market. After a week on this one, I did not have the side effects as before, but rather broke out with Hives from Hell from my scalp to my toes. OMG!
Someone please take a gun a shoot me! The welts were on top of welts. In fact, today, there is still a shadow of the scarring. So when I called the doctor to tell him about this reaction, he said that I don’t need to continue on this product -you think?
Now, the GOOD part of all this is that since I had access to my port, I was able to do my chemo at home and not have to go to O.C. to have it done. Saved me a mint!
During this timeframe, John and I took time off of our merry-go-round and went to our Timeshare in Cabo (anyone interested in renting a week? Only $725 for 7 nights!) Then the Holidays came and went and on January 1, 2011 I turned 53 yrs. old. Some days I can honestly say that I felt each and every one of those years. As a B-day gift from John, we got tickets to a Abraham-Hicks workshops in Universal City on Feb. 12th. It was incredible!!!
At the end of December, I had a PET scan and the results came back that there were no signs of any more cancer!!! My lymph nodes as well as breast were clear, with no signs anywhere else in the body either. YEY!!!
Here’s some great news in the midst of all of this – John got a job! One that he likes! This Friday will mark his 4th week. The main office is close to home and he does mostly traveling during the day, but he’s home between 4-5 p.m. Thank the Universe for this small miracle!!! It always provides what we need in its Divine time. I think he was done playing nurse-maid. After all, he was out of work for 3 years and a nurse for 2 yrs. The only sad part of all this is that I’ve lost my cook!!!
So by February, John had been cleaning my dressing, rather “stuffing” me like a turkey, twice a day, so that I wouldn’t have to pay for the nurses to come out. (Mind you, I was told that their services were covered by my insurance. What they DIDN’T tell me is that I would have a co-pay for each visit. So for almost every day for 3 months, I am being charged for $15 per visit. They can stand in line for payment.). My wound was NOT healing, it was still open. Dr. Attar attributes that to the radiation. Thank goodness I chose not to go back for further treatments.
I then went to Dr. Ku, a plastic surgeon in Riverside, dynamic doctor, for a final surgery. He performed the kind of surgery where he had to create a flap to pull over the gaping wound. This was on Friday Feb. 18, 2011. It was an out-patient procedure and I was home in 3 hours.
I went for my follow up appt. on Monday and he said I was doing well. The drain tube would be in for another week. 
I was in a lot of pain, so I tried Darvocet and Vicoden – nothing helped. So the Dr. prescribed Percacet. That worked better. The prescription was for 1-2 tablets. On Tuesday I was so uncomfortable that I took two when John got up at 3:45 a.m. for work. By 11:00 a.m. my sister Monique had to take me to Emergency because I could not breathe. I was there until 6:00 p.m... I had an EKG, CAT scan (let me tell you how much fun that was to have them find the ONE vein to work with on my HAND), X-rays and blood panel. They found fluid on my chest wall, and NO blood clot in my lungs – that was their main concern.
I explained to the doctor that I believe it was because of the Percacet that I got this reaction, he continues with that it’s because of the fluid that is putting pressure in my chest and therefore created anxiety; and if it persists to have my surgeon aspirate it out with a needle. But that it was okay to continue taking the pain med. Is he kidding? Just keep pushing the drugs, doctor-man.
By the end of the next day, the shortness of breath symptoms had subsided.
I went for another follow-up at Dr. Ku’s on Monday March 7th to take the draining tube out. Piece of cake. I explained to him what had happened at the ER and what the Dr. there told me. He responded with “Of course there’s fluid in your chest wall, we just did surgery, that’s the blood that the drain was getting out. The symptoms were most likely from the Percacet; otherwise, they would not have subsided without having had a procedure to remove the fluid”. I tell you, I would make a hell of a doctor’s assistant with all I’ve learned!!!
What’s Next: I will be beginning my Xeloda –Chemo pill and Arimidex-Hormone Therapy to keep Estrogen away, tomorrow as I will be done with my antibiotics today. I will be doing the chemo pills 5 days on, one week off, for 4 months and will then be evaluated. NOTE: These products were prescribed to me by my Oncologist Dr. Vargas in Mexico. I asked my GP Dr. Doughten if he would be willing to write the prescription for me as they would be covered under my insurance, therefore saving me thousands of dollars. I faxed the Dr. Vargas’s protocol to Dr. Doughten and he agreed to do so. OMG!!! Is that not HUGE? I am so appreciative of this gesture, as he had done in the past with my Neupogen injections for when my White Blood count would go down from the chemo. See? It confirms what I believe – it NRVER hurts to ask…especially when it comes to YOU taking responsibility for your physical care.
I’m still following a sugar-free diet – found a great book on www.AlibrisBooks.com (used or new cheap books online) using Stevia for sweetener by author Kirkland. It saved me over the holidays – lots of good recipes.
So, there you have it. I’m feeling more “human” today than I have in many weeks. I’d like to do something for fun, please. I’m going to visit my fabric/sewing closet. Working on a skirt made out of ties. Did you know that the 99 Cents Only Stores sell Silk Ties for a buck? You know I shop at only the finest stores…
So those of you interested in participating by vending, volunteering, donating to the Raffle or performing in this year’s Shimmy 4 Critters Fundraiser on Sat. Oct. 8th, please contact me by email me at:
Maarifa@sbcglobal.net .
Thank you all for your relentless support and prayers – I am deeply touched. Take care,
Marilyn/Mother Maarifa
We indulge in fatty, sugary foods, over-exposure to the sun and add too much alcohol (you know I like my red wine!), we don't sleep enough, we don't laugh enough, we rush too much. For those of you who have seen me recently, I'm sure you've noticed that I have found the silver lining...right on top of my head! Yes, Miss Clairol can no longer be held responsible for letting the cat out of the bag. I have been grey for over 20 years, and now there is no hiding from it. As a matter of fact, I like it! It is so freeing - there is nothing to hide behind. It is as it is. I think it's beautiful, but, then again, I'm a little partial too. Who knows, if I decide to color it, I can be creative...I could be a platenum blond! I've added my latest picture taken at a HS luncheon last weekend. I look spooked because each time they took the picture, my eyes would close, so I had to really concentrate on keeping them open for this one! So, with this said, I am going to return to my home treatments, but wanted bring you all up to date. Know that I love and care for you all - you have really shown me how loved I am! Blessed be, http://www.marilynchocron.com/ (2 of 5) [1/15/2010 7:54:48 PM] Marilyn's Place Marilyn/Maarifa